Friday, December 25, 2009
Spoiled, growing up with divorced parents
They worked better after they were divorced than they did when they were married. My mom had us most the time, but allowed my dad to take us anytime that worked. He was never late to pay child support, & was consistently there for us. Most of all on Christmas & other holidays & special days, my dad came early in the morning. For Christmas he was there for us to open gifts, & would stay with us the entire day, even coming to to my Mom's family's house for Christmas diner. Both making an extraordinary effort, giving us the best of both of them. We didn't feel we missed out on anything & didn't have to choose, or have it decided for us. That was better than any gift they could buy! Now I am even more grateful since my dad died very young. I am so glad I had those times with both of them, & was able to spend more time with both my parents than I would have been able to separately, & that is greater than anything I could have ever been bought.
Sunday, December 6, 2009
Happy December Birthdays
Thursday, December 3, 2009
Too much, too fast, now so stuck
On Thanksgiving day as I stayed home alone again, unable to get beyond my stubborn body. I decided to ask for the most help I've dared thus far, & that courage took days to muster. I wanted to sit by Christmas, & hopefully avoid missing another holiday w/my family. It was brave, but didn't seem huge, like a brace to help me sit up, not w/out pain, just to sit up. Just to try, if it didn't work at least something new would be ruled out.
I was very wrong, my calls left me unsure of what I should do when I'd usually go in again. I'm now on a 5 month waiting list for a pain clinic...not the problem most urgent, & many holidays & a vacation away that I had hoped to be part of. I'm beyond frustrated, & left to start over w/someone new. To start over w/finding answers, & everything else on my own. Not a 1st, but sad since this Dr had helped me so much, & I had hope for more, but now...I guess I gotta believe there is someone out there that will be willing to try & help me again.
Wednesday, November 25, 2009
Happy Thanksgiving!!!
Charlie
Sunday, November 22, 2009
I am
So, I haven't been able to post as often as I had hoped. I tried though, & did think more about what I am thankful for, than I think I would have, had I not started this. I hope I still can keep this up at least once a month after November.
Today's thankful post is about being different. My life has always been different, & even though not everything has been good...I wouldn't know what I know, or be who I am without a lot of it. The song is again one I like, that for me fits this subject of owning the differences we each have.
I am a contradiction to myself in some ways. I am a Gemini & a Cancer, born on the day in between. I've been the oldest & a middle child. I've been a caregiver, family member, advocate, patient, volunteer & friend. I've ended up seeing life from so many perspectives that hopefully I can relate to more people, & know more than I would have otherwise.
My mom had a home daycare which felt like I had many brothers & sisters. I learned how to calm a baby, cook for many, & take care of & deal w/people w/all different types of personalities. I can deal with anything, & am rarely surprised by what anyone tells me. Most of all I learned patience, it's really, really hard to make me angry. I don't tend to get frustrated, or flustered, & because noise was a norm, I have been able to help people that others couldn't deal with.
I also spent so much time with my Papa(grandpa) & cousins. He took care of us, & it was great to have someone who taught me so much, & to be so close to family. I had a lot of amazing family all around each taught me something important. An aunt gave me the opportunity to feed the homeless & help in other ways that definitely effected the way I think of things, & live. I was lucky enough to know & be loved by someone who joined our family from another country when I was a baby. From them I learned about another culture, & how amazing our world & everyone is beyond where I live. My dad was a pilot & skydiver, & it was so fun to be able to hang out & see a lot of things that no one else ever has. I loved to fly! It was a unique life & it was mine.
Thanks to my learning disabilities, I had to fight to learn...I had trouble communicating, still do to a point. I relate to people who can't speak, sometimes better than those who can. I use songs, movies & quotes to express what I feel.
My physical problems have shown me a totally different life. It's not easy, & I would often wish things away if I could. I'm often ashamed, have lost friends, dreams, & had to fight for a lot. It is because of all of this that I have tried to fight for so much. I know things now that others don't, & have a voice to share it. The ways I am different are the ways that I can make a difference, & why I am me. It won't change the way people treat me, but if it helps with something...maybe just maybe all of it will be worth it. At the very least I know the way I treat others is difference thanks to my experiences, & hopefully will make a difference, to give someone else the support or help them find what they need. Those who take the time usually learn something, or so I've been told, which is reason enough to keep on, & facing whatever may come.
We are all individuals, & when we judge someone, we miss out on knowing something that might have been wonderful. I appreciate those who have given me a chance, & who have taught me so much!
Wednesday, November 18, 2009
Insurance again, YEAH!!!
So...for 3 weeks I didn't have any medication, which was not good for me. I am so lucky I made it that long, & seem to have only suffered muscle loss, which happens sometimes even with the medicines. The medicines just lessen the feeling(it's like a charlie horse that doesn't quit)I was very lucky that nothing bad happened, & even luckier to now have insurance. For me to buy insurance a few years back, because of my problems, it would have been 3-4 times more every month. than what I earned each month.
For me to be able to go on vacation in a couple months, I need to have gotten many needs met. It will be my first trip in 10 years, & will be so fun, I just gotta fight now to be able to enjoy every moment possible then. This gives me the opportunity, although frightening, to find answers, & hopefully some creative solutions. Being a medical Zebra makes it hard for Dr's to treat me because I am soooo different.
I also know what it's like to have no insurance & uninsurable. I acquired bills that I am still paying for, & had to see people not by who could help best, but by who was the very cheapest. Luckily I had family help, or I would have been so far over my head, that I would have never gotten out of debt.
When I volunteered with homeless families, almost all had the same reason for their situation. They were typical families who had a child who became very sick. Insurance was not available to them, or not adequate before. Then once a person has a preexisting condition, it's expensive to buy, & a process to get anything else.
Laughter may truly be
Saturday, November 14, 2009
Religion ♫We are one♫
Today's thankful post is about religion, as a whole, not mine alone. This song to me fits what I think. It is ♫We are one♫ by the Veronica's. It is what I wish more people could see, & appreciate...we are still all People. We may worship in all different ways, with very different beliefs, but when each finds the way that is right for them...so much good can happen. I have seen people of all religions helped through the worst of life through their faith. Ideally it can bring strength, comfort, & hope. Those are things that everyone needs.
Of course no religion is free from extremes, or people who hurt others, but that doesn't mean they are representing all. People who hurt in the name of religion are seldom truly following the religion they claim to be. Likewise religion doesn't make people automatically good, there are in fact wonderful people who are atheists, but do much more for the well being of others than those who claim they are the most perfect. Judging a religion by a small few, or rumors, seldom gives a good idea of the people who are members & doing their best to follow. I am no different, having been hurt by some members of a religion, I still find it hard to let go of the pain caused. It seems too often we are separated, religion against religion, people against people.
I have seen amazing things when religions come together. For many years I was blessed to know of a group that helped homeless families. It consisted of members of so many religions, working side by side to help wonderful families who had lost their homes. It was very successful in helping almost all recover, & we did so together. Everyone contributed, various religions taking turns hosting the families, they & volunteers staying in their house of worship. Not all of us who stayed were members of the religion of that church, but we treated it with all the respect we would our own. We worked side by side to gather & or make donations. We were not divided by our religions, we knew of each others, but didn't fight about it. We didn't speak of your belief or my belief between us we spoke only of our
. We worked as one, loved as one, we were there for the same purpose, to help. I know of so many other ways religions have helped, together, without fighting, hating, or hurting. We are one...& that one, can accomplish amazing things together.
I wish we could understand one another a little better, get along a lot better, and that more people understood that a religious book, is a religious book, no matter the religion or who believes it. A sacred place, or church is important, because for believer's it's a huge part of their world. Regardless of the religion, I still cry for the believer, when any building or important item for them is vandalized or destroyed.
Their religion doesn't change those feelings, or the importance of what is sacred to them.
In my life I have been helped & loved by People who were Christians, Buddhist, Jewish, Atheists & many more. I am grateful to them all, & what their beliefs gave them!
"First they came for the communists,
and I did not speak out—
because I was not a communist;
~~~~~~~~~~~~~~~~~~~~~~~~
Then they came for the socialists,
and I did not speak out—
because I was not a socialist;
~~~~~~~~~~~~~~~~~
Then they came for the trade unionists,
and I did not speak out—
because I was not a trade unionist;
~~~~~~~~~~~~~~~~~~~~~
Then they came for the Jews,
and I did not speak out—
because I was not a Jew;
~~~~~~~~~~~~~~~
Then they came for me—
and there was no one left to speak out for me."
-attributed to Pastor Martin Niemöller