Wednesday, November 25, 2009
Happy Thanksgiving!!!
Happy Thanksgiving!!! I hope your holiday is one filled with love, laughter, & all the important things that make good memories for years to come!
Charlie
Sunday, November 22, 2009
I am
So, I haven't been able to post as often as I had hoped. I tried though, & did think more about what I am thankful for, than I think I would have, had I not started this. I hope I still can keep this up at least once a month after November.
Today's thankful post is about being different. My life has always been different, & even though not everything has been good...I wouldn't know what I know, or be who I am without a lot of it. The song is again one I like, that for me fits this subject of owning the differences we each have.
I am a contradiction to myself in some ways. I am a Gemini & a Cancer, born on the day in between. I've been the oldest & a middle child. I've been a caregiver, family member, advocate, patient, volunteer & friend. I've ended up seeing life from so many perspectives that hopefully I can relate to more people, & know more than I would have otherwise.
My mom had a home daycare which felt like I had many brothers & sisters. I learned how to calm a baby, cook for many, & take care of & deal w/people w/all different types of personalities. I can deal with anything, & am rarely surprised by what anyone tells me. Most of all I learned patience, it's really, really hard to make me angry. I don't tend to get frustrated, or flustered, & because noise was a norm, I have been able to help people that others couldn't deal with.
I also spent so much time with my Papa(grandpa) & cousins. He took care of us, & it was great to have someone who taught me so much, & to be so close to family. I had a lot of amazing family all around each taught me something important. An aunt gave me the opportunity to feed the homeless & help in other ways that definitely effected the way I think of things, & live. I was lucky enough to know & be loved by someone who joined our family from another country when I was a baby. From them I learned about another culture, & how amazing our world & everyone is beyond where I live. My dad was a pilot & skydiver, & it was so fun to be able to hang out & see a lot of things that no one else ever has. I loved to fly! It was a unique life & it was mine.
Thanks to my learning disabilities, I had to fight to learn...I had trouble communicating, still do to a point. I relate to people who can't speak, sometimes better than those who can. I use songs, movies & quotes to express what I feel.
My physical problems have shown me a totally different life. It's not easy, & I would often wish things away if I could. I'm often ashamed, have lost friends, dreams, & had to fight for a lot. It is because of all of this that I have tried to fight for so much. I know things now that others don't, & have a voice to share it. The ways I am different are the ways that I can make a difference, & why I am me. It won't change the way people treat me, but if it helps with something...maybe just maybe all of it will be worth it. At the very least I know the way I treat others is difference thanks to my experiences, & hopefully will make a difference, to give someone else the support or help them find what they need. Those who take the time usually learn something, or so I've been told, which is reason enough to keep on, & facing whatever may come.
We are all individuals, & when we judge someone, we miss out on knowing something that might have been wonderful. I appreciate those who have given me a chance, & who have taught me so much!
Wednesday, November 18, 2009
Insurance again, YEAH!!!
So...for 3 weeks I didn't have any medication, which was not good for me. I am so lucky I made it that long, & seem to have only suffered muscle loss, which happens sometimes even with the medicines. The medicines just lessen the feeling(it's like a charlie horse that doesn't quit)I was very lucky that nothing bad happened, & even luckier to now have insurance. For me to buy insurance a few years back, because of my problems, it would have been 3-4 times more every month. than what I earned each month.
For me to be able to go on vacation in a couple months, I need to have gotten many needs met. It will be my first trip in 10 years, & will be so fun, I just gotta fight now to be able to enjoy every moment possible then. This gives me the opportunity, although frightening, to find answers, & hopefully some creative solutions. Being a medical Zebra makes it hard for Dr's to treat me because I am soooo different.
I also know what it's like to have no insurance & uninsurable. I acquired bills that I am still paying for, & had to see people not by who could help best, but by who was the very cheapest. Luckily I had family help, or I would have been so far over my head, that I would have never gotten out of debt.
When I volunteered with homeless families, almost all had the same reason for their situation. They were typical families who had a child who became very sick. Insurance was not available to them, or not adequate before. Then once a person has a preexisting condition, it's expensive to buy, & a process to get anything else.
Laughter may truly be
Saturday, November 14, 2009
Religion ♫We are one♫
Today's thankful post is about religion, as a whole, not mine alone. This song to me fits what I think. It is ♫We are one♫ by the Veronica's. It is what I wish more people could see, & appreciate...we are still all People. We may worship in all different ways, with very different beliefs, but when each finds the way that is right for them...so much good can happen. I have seen people of all religions helped through the worst of life through their faith. Ideally it can bring strength, comfort, & hope. Those are things that everyone needs.
Of course no religion is free from extremes, or people who hurt others, but that doesn't mean they are representing all. People who hurt in the name of religion are seldom truly following the religion they claim to be. Likewise religion doesn't make people automatically good, there are in fact wonderful people who are atheists, but do much more for the well being of others than those who claim they are the most perfect. Judging a religion by a small few, or rumors, seldom gives a good idea of the people who are members & doing their best to follow. I am no different, having been hurt by some members of a religion, I still find it hard to let go of the pain caused. It seems too often we are separated, religion against religion, people against people.
I have seen amazing things when religions come together. For many years I was blessed to know of a group that helped homeless families. It consisted of members of so many religions, working side by side to help wonderful families who had lost their homes. It was very successful in helping almost all recover, & we did so together. Everyone contributed, various religions taking turns hosting the families, they & volunteers staying in their house of worship. Not all of us who stayed were members of the religion of that church, but we treated it with all the respect we would our own. We worked side by side to gather & or make donations. We were not divided by our religions, we knew of each others, but didn't fight about it. We didn't speak of your belief or my belief between us we spoke only of our
. We worked as one, loved as one, we were there for the same purpose, to help. I know of so many other ways religions have helped, together, without fighting, hating, or hurting. We are one...& that one, can accomplish amazing things together.
I wish we could understand one another a little better, get along a lot better, and that more people understood that a religious book, is a religious book, no matter the religion or who believes it. A sacred place, or church is important, because for believer's it's a huge part of their world. Regardless of the religion, I still cry for the believer, when any building or important item for them is vandalized or destroyed.
Their religion doesn't change those feelings, or the importance of what is sacred to them.
In my life I have been helped & loved by People who were Christians, Buddhist, Jewish, Atheists & many more. I am grateful to them all, & what their beliefs gave them!
"First they came for the communists,
and I did not speak out—
because I was not a communist;
~~~~~~~~~~~~~~~~~~~~~~~~
Then they came for the socialists,
and I did not speak out—
because I was not a socialist;
~~~~~~~~~~~~~~~~~
Then they came for the trade unionists,
and I did not speak out—
because I was not a trade unionist;
~~~~~~~~~~~~~~~~~~~~~
Then they came for the Jews,
and I did not speak out—
because I was not a Jew;
~~~~~~~~~~~~~~~
Then they came for me—
and there was no one left to speak out for me."
-attributed to Pastor Martin Niemöller
Friday, November 13, 2009
Kiddos

Today's Thankful post is for & about the the kids I've known.
Kids have taught me more than anyone else. It sounds cliche but there is so much that can be gained from knowing a child.
This photo is posted w/the baby's Mom's permission of course. It's one of my favorites. To me besides being so cute...it's a reminder of what I wish for all children. I have been exceptionally blessed to know several families that are incredible in so many ways...I try to be very general and discrete in all cases, & so for the most part try to express my complete awe to them directly.
I'm not going to say how many families there are, who they are, many have never met one another, & if they did I wouldn't say...but all are so important to me, & have taught me so much.
W/these families who adore their children, the way these do, it's a completely different experience. I love the children no more or less than I would otherwise, but it has been so wonderful to see what is possible! In these families the children are adored & appreciated for who they truly are. Kids who are cared about & for as I dream is possible for all! These families have made me better in so many ways!
I've been taking care of kids for as long as I can remember. It was the most obvious thing in life to me that you take care of those younger than you, or that needed it. Every child deserved to be loved, protected, & cared for. I've never met an unlovable child & know I never will!
Over the years I've been blessed to have known & taken care of well over a thousand children. Some for a very short time...others for a week or more straight. The situations, were as different as the children themselves. I'm glad to have known all, but the hardest were not because of the babies personalities, or anything they did...it was because I was caring for them for only a few hours or a night, not knowing who would have them next, or if they would be loved...I pray they were. I think I remember each, I know I remember so, so many. The longer I knew them, the more great memories I have, & the wonderful things I learned about each child. I loved reading stories, singing songs, & "counting" with them all the people who loved them so much.
I hated when they were sick, & I rocked many as long as they needed. Admittedly, at times crying w/them. I tried not to, especially if I was scared, but never figured that out well.
I have wished I knew of somethings then, that I know now. I wish a lot of things, because I know success is when a child is as happy, healthy, & secure in every way as possible. I always have wanted the best for all of them, & did all I knew at the time to help them feel & be all that is good & possible!

I guarantee I remember & care about you, that will NEVER change no matter what! I would also never want to embarrass anyone, one of the reasons I am so careful about what I say.