Wednesday, October 15, 2008

Bad mood fading

I can't believe what a bad mood I was in, the last few posts. Better not to read those, I had just had such bad luck for so long, and have been worried about people and problems it isn't mine to say. I worry, that isn't going to change, and will always care if those I love are happy, safe, and treated well, among other things. Between that and being bothered by things in the last few years, and people I no longer go near isn't very wise mind of me. Either way I'm letting things get to me that I have no control over, or are in the PAST. I am just glad they aren't problems now.
I am hoping that my Mom's car will keep going, and that I can keep driving the one I have now. I don't want to deal with Paratransit anymore, it's a nightmare that no one should have to deal with, EVER!! Oddly enough the day the windows were shot out was still a good day. I can't really say more, last time I said too much I was not allowed to ride for 6 weeks. I want people to know what it is like and what many people are put through that cannot speak for themselves but probably need a way to get around for a long time after that. It may be a good thing I couldn't drive for a time and had to ride, and see what things are really like. Now that all is well I am hoping to use that knowledge to help in some way those who are stuck. This sounds a bit negative, but doesn't feel the same. It is something that still is possible to help, not something that won't change and just is. I gotta get my keyboard up again too, it is my greatest outlet. Without things have gotten boring, and that and my phone and Computer not working, things got really stuck. Now computer is working, and I am getting close to caught up with things. I can get my keyboard going again, and was able to talk to my niece through my sisters phone. Life is just not good unless I can hear her sing Elmo's World.

Monday, October 6, 2008

Lucky day

Today I had an uncharacteristically good day. What started out seemed to be bad, but all ended good by the end. My leg brace(AFO-picture on the right)broke, making the braces I was trying to get necessary. I needed new ones anyway, this will just help it along, and the new ones would be much shorter on my leg, lighter, and less obvious, besides being able to wear more than tennis shoes. I'm so sick of having such limited options. Anything would be amazing.
I missed an appointment because of my brace, but it turned out it wasn't needed, so not a bad thing.
In the mail was two full envelopes from the State. Last time it was horrible so I assumed the same. Unfortunately I have to have Medicaid and all being unable to work full time, and considered uninsurable. The process to get and keep them are hard. I last got sent most of my medical records, some which I didn't want to know about. Anyway today was to let me know that, that decision was decided to have been wrong, and inconsistent. It made a huge difference because of the last time alone. Sometimes it's better not to know what someone thinks of you, or what might be wrong. A list of possible problems isn't the same as having them, and was overwhelming. Besides that there were some I knew would be bad, I have had far too many the past few years, not knowing that their treatment of me was at time torture, and made life so much harder. As well as having lasting effects, I am so glad to be free from most of that now, and have been for a few months. What gets me most is that they don't realize just how wrong they were, or the effects, and will do it to someone else.
Several professionals actually got in trouble for their treatment of me, or lack of. Needless to say they were not happy with me, the Doctor having even looked up other information on me, and my life. It was upsetting that someone could have an influence in such a way. So glad I'm not facing quite what I thought I was. Yeah!!
Next I got to talk to my niece, not new but today she kept singing Elmo's world, and said "hi Nama" not what she calls me but the first time she said Hi, and kind of sang it too, so cute. I love that Baby soooo. Then as I talked to her mom(my sister) and our mom(Nama) I could still her singing Elmo's world in the background, which just was so cute.
I also finally was able to get a new hearing aid, I have had only one for so long, now I have two, and they even match completely.
Last but not least my Allergist is helping me with my Sun problem. It was so nice for someone to listen and believe and trying to find ways to help me brought me to tears. I didn't realize how much I had missed that, and can't say how much a difference every person who willingly helps me, listens, or is just kind to me makes a difference in everything. To those amazing few I am forever grateful. I came along a lot of good today, and found out some good things, but more than anything I have hope again.
Last week I was told I would either be confined inside, or must quit taking the medication that keeps me alive, since it had listed the problem as a side effect. Either stay inside, or quit taking the medication that keeps me alive. Thankfully my allergist new better, and is still helping me, and knows more in this area than any other Allergist, or other related specialist. Either way, I have possibility that I didn't have before today.
Sorry rambling, I'm so tired, but so grateful to him, and some others who have been amazing.
I also have finally hooked up the scanner that works so well, and is so fun, and giving me so much to work with and on.